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"Cauda Equina"

About: Queen Elizabeth University Hospital Glasgow / Neurosurgery (Ward 64 – 66) University Hospital Wishaw / Neurology

(as a service user),

I am writing to yourself with an urgent request. In January 2019 I was sent to Wishaw Hospital suffering serious back pain and unable to urinate. After an MRI scan, it was discovered I had cauda equina syndrome and immediately transferred to the Queen Elizabeth Hospital for back surgery within the Neurology Department.

Approximately 2 weeks post surgery, I was brought back into hospital, where they discovered the disc required more surgery.

Following my physio and withdrawal from painkillers, I made a full recovery. Roughly 1 year later, the pain has returned in my leg and numbness within the saddle area. I have been in contact with my GP on numerous occasions and have been advised to keep taking painkillers until I am recalled to hospital.

I was referred in December 2020 for another MRI scan. Following this, I was advised in February by the Neurology Department that the disc requires more surgery and there was a 3/4 month waiting list for the operation. 

I appreciate this is uncertain times due to COVID, however, after speaking with the consultants secretary, I have been made aware that I'm on the non-urgent list and can wait up to 5 years. 

I am asking for your help in this matter as I'm physically and mentally drained and struggling to maintain a happy family life. 

The doctor is only willing to keep me on highly addictive painkillers which I struggled to withdraw from after my first surgery. 

I'm currently taking as little as I can as i'm self employed and can't function properly with normal day to day activities. This is also having a major effect on my marriage which is now under great pressure

The first time this happened, I wasted over a year of my family life trying to achieve a diagnosis. I'm finding myself slowly withdrawing from family and friends as all I can do is work and then come home and go straight to bed as I'm in a great deal of pain.

This is very unlike me and I have a great attitude on life and usually a very active family man. My wife and kids are also suffering as a result of my back pain.

My wife is insisting that I contact my GP again as I'm sinking into a depression. This is something I really don't want to do, as I don't want to take any more medication than I am already on.

I would be very grateful if you could review my email and if there is anything you could personally help with?

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Responses

Response from Lisa Dorrian, General Manager, Oral Health Directorate, NHS Greater Glasgow and Clyde 2 years ago
Lisa Dorrian
General Manager, Oral Health Directorate,
NHS Greater Glasgow and Clyde
Submitted on 11/08/2021 at 14:09
Published on Care Opinion at 14:52


Dear Mechanicguy1979,

I am sorry to hear how you are feeling and that you are in pain.

Please contact me on lisa.dorrian@ggc.scot.nhs.uk with your name and CHI or date of birth and I can look into this for you.

Kind regards

Lisa Dorrian

Clinical Service Manager

Neurosciences & OMFS

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Response from Lesley Mallon, Risk Management Facilitator, University Hospital Hairmyres, NHS Lanarkshire 2 years ago
Lesley Mallon
Risk Management Facilitator, University Hospital Hairmyres,
NHS Lanarkshire
Submitted on 16/08/2021 at 10:50
Published on Care Opinion at 10:50


picture of Lesley Mallon

Dear Mechanicguy1979

Thank you very much for posting your feedback on Care Opinion. I was very sorry to read that following surgery in the Queen Elizabeth University Hospital, Glasgow, you once again are experiencing pain and similar symptoms.

I note that following your post, Lisa Dorrian, from NHS Greater Glasgow and Clyde, has asked that you make contact with her to allow her to look into the concerns you have. I sincerely hope that with Lisa's help you are able to access the treatment you require. If I can be of any help in relation to accessing services in NHS Lanarkshire, please email me on lesley.mallon@lanarkshire.scot.nhs.uk quoting care opinion reference 869360.

Kind regards and best wishes for the future.

Lesley

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