"Autism Unfriendly "

I have been admitted to Hospital 3 times in 5 months with a heart attack

I have a passport as I am Autistic and so face many challenges in going to the Hospital

Every time I have been they never read it or follow it resulting in my stays been so traumatic

They make me feel I am just a nuisance , they do not follow what is says will help me to stay and get the treatment I should deserve like anyone else

When finally it results in me having an Autism meltdown where I am overloaded and feel I have to leave and I am distressed and crying in fear they just throw the self discharge papers at me and say it is your choice

I was not asked to be born Autistic , I cannot help how I see the world differently which is full of fear , I cannot help I do not withhold information the same , I cannot help I need to be updated to help keep me calm along with other adjustments

The nursing staff just do not care , this last visit it took me to ask 3 Matrons to listen to me and only after the 3rd and the day I was been discharged did they finally start following my passport which was to late by then the damage had been caused

The Hospitals Mental Health team do not want to no , you are not classed as having learning disabilities so there is no support

Autistic people are left with nothing and no one to help speak up for them

This last admission has been so traumatic they have now signed my death certificate

I have had 3 attempts trying to get the medical care I need but the fear they have created I will never go again even if I know I am having a heart attack or anything else is wrong I would rather stay at home and let whatever happens , happen than be traumatized

It is well known that Autistic people can die younger for the fear of going to get the help they need and up till now I have been lucky that I have never needed their help but now through their ignorance lack of caring they have put me in that category

They should be ashamed

I do not expect the nurses to understand but I do expect them to care enough to accept people like me and follow the passport which explains to them what will help

Chesterfield Royal Hospital is not Autistic friendly and they have now made me so full of fear I will possibly pass away earlier than I should

However the Consultants I saw were far more open minded and caring and the cleaners and tea ladies showed more compassion

This needs to be addressed , I have put complaints in before but even though they say they have listened no changes have been made !