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Care Opinion

I haven't heard from anyone

Posted By Jm20x

"I haven't heard from anyone"

About: Craigavon Area Hospital / Emergency Department Craigavon Area Hospital / Urology

(as a service user),

Yesterday at A&E I met the first doctor I have spoken to face to face to in over a year, very human, also shocked and angry about how I have been treated when he looked at my records.

Unfortunately, it won't change anything for me it's simply too late. I have several lifelong chronic conditions and felt it would be safer if I cancelled my carers due to covid in March. I literally haven't heard from anyone since. I have lost so much weight without their help and have had a few bad falls - I was paralysed from the waist down after an operation nearly two years ago. I have had kidney problems for nearly 10 years, with on average one infection every month, some now lasting for up to 2 months...   I rang about seeing my consultant only to find I have been discharged from urology for some unknown reason. I am sure the consultant doesn't know about the oversight as the last time we spoke after the operation and a very painful 8 years, they were going to lay out my options and give me diagnoses at our next appointment.  

My GP doesn't actually see people anymore and the odds of even getting through to the reception is about 1: 100 provided to ring constantly between 8. 30-9. 00 every day for a week. The last time I got through I asked if I was on the list for the flu jab and I am not.  I can't take any more. Because I have no carers I now have no social worker, OT, Physio/rehab or GP. I have an FND and can hardly tie my shoelaces and in am so much debt because I am unable to any type of work. I have run out options and frankly lost the will to live.   After two years stuck at home, I don't think I could leave my house if it was on fire. I tried praxis and primary mental health services both said they didn't know about FNDS and could not help me. No doubt I will be just a statistic of Covid, just thought I would put it down so it might help someone else.  

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Responses

Response from Leah-Ann Shanks, Primary Mental Health Co-ordinator, Primary Mental Health Care, Southern Health and Social Care Trust 3 years ago
Leah-Ann Shanks
Primary Mental Health Co-ordinator, Primary Mental Health Care,
Southern Health and Social Care Trust

Submitted on 08/12/2020 at 17:25
Published on Care Opinion at 17:25

Dear Jm20x, I am the Primary Mental Health Care Coordinator in the Southern Trust.

I want to firstly thank you for taking the time to tell us about your recent experience. I am really sorry to read about all the difficulties you have encountered, especially over the last year. I appreciate that it can be difficult to get through to your GP, however I would urge you to get in touch with them to explain how you are feeling and so that you can get a referral for assessment with the Primary Mental Health Service. Your GP may also be able to help you get in contact with the right team so that you can also receive some help with your care needs.

I am providing some contact numbers below which may help you and again I would urge you to use them:

Urgent help and support

Emergency services: 999 or 112

24 hour support for those in distress or despair.

Lifeline

Telephone: 0808 808 8000

Samaritans helpline

Freephone 116 123

Southern Area out of hours GP

Telephone: 028 3839 9201

After 6pm and all day Saturday, Sunday and bank Holidays: Deaf and hard of hearing –Textphone users can call Lifeline on 18001 0808 808 8000

Thank you again for telling us about your experience and I hope you will be able to get some help from the information I have provided

Best regards

LeahAnn Shanks

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Response from Christine Armstrong, Care Opinion Facilitator, Patient Experience, Southern Health and Social Care Trust 3 years ago
Christine Armstrong
Care Opinion Facilitator, Patient Experience,
Southern Health and Social Care Trust

Submitted on 09/12/2020 at 11:00
Published on Care Opinion at 11:00

picture of Christine Armstrong

Dear Jm20x - I am the Care Opinion Facilitator for the Southern Health and Social Care Trust and would also like to thank you for taking the time to share your experience with us. Like LeahAnn, I am also very sorry to read about your experiences, which have clearly caused you a lot of distress. There are some issues which I would like to look into in more detail, including your experience with urology services. I would be grateful if you would contact me directly so that I can follow up on this for you. You can contact me by email:

Christine.Armstrong@southerntrust.hscni.net

I look forward to hearing from you

Best wishes

Christine Armstrong

Care Opinion Facilitator

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