I'm in my 50's and suffering hypercalcemia, been told I have FHH but I get kidney stones regularly, gall stones, hardened arteries, osteoporosis, fatigue depression, memory loss, clubbed nails - all point to calcium imbalance. For the past five to seven years I have been on vit d3, there are three types of vit d the body uses depending on liver-kidney function. I don't know if mine is correct one. Folic acid to correct imbalance but no gene test to confirm FHH, and if FHH what type as some are treatable.
I have researched my symptoms and it clearly explains why FHH is misdiagnosed and why wrong levels of calcium in blood is a long-term killer taking sometimes 25 years to be found, only when patient is administered with some other seemingly unconnected life-threatening condition. My last endocrinologist said I had FHH and would just need my calcium checked regularly, I have had very little blood tests since diagnosis and they were not checking my pth blood calcium.
"Getting a diagnosis"
About: Dumfries & Galloway Royal Infirmary / Endocrinology Dumfries & Galloway Royal Infirmary Endocrinology DG1 4AP General practices in Dumfries and Galloway General practices in Dumfries and Galloway
Posted by longdog (as ),
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