"Amazing Paramedics & Caring Doctors/Nurses"

As well as being a Type 1 Diabetic for 24 years, I also have a very rare disease called CVS - Cyclic Vomiting Syndrome which is Mitochondrial in nature. I developed Adult Onset CVS 8 years ago but due to its rarity, I was only officially diagnosed in 2015 after I had done my own personal research and advocacy to find a Gastro Specialist who knew about CVS. Luckily, I did find an amazing Consultant Specialist and from there I was then able to, with his help, find a daily preventative medication regime and also an "abortive" meds regime for when I develop Prodromes - which are the pre-stages of a fully blown CVS attack. Prodromes for me, can be frequent, unpredictable & whilst I have managed to identify triggers to thus avoid they can just happen randomly. Unfortunately, I am on the more severe end of the CVS spectrum which means that I suffer with daily symptoms of CVS along with Prodromes & Attacks. My main daily symptoms include Intractable Epigastric Pain (chronic pain) and unremitting Nausea. Full CVS attacks are extremely intense. I can involuntarily vomit up to 40 times an hour, with extreme Nausea that will not let up and severe Epigastric/Chest pain. Also, during an attack my blood sugars can go very high which then leads to Ketones (acid) in my bloodstream causing a DKA which again has its own subset of awful symptoms. When I cannot successfully abort an attack I have to call an ambulance to go to hospital. My usual abort medications (Protocol) have to be given to me via IV as I cannot keep anything down orally due to the vomiting & incessant Nausea. I have created a Personal Medical Folder that includes ALL my medical documents, medications, details of my medical team, Medication Protocols for attacks etc. I find that being my own patient advocate for my rare disease alongside my folder really helps the Paramedics who come out to me, as all the information in my folder assists them greatly. The paramedics (Torbay) who come out to me are amazing, compassionate & very grateful for my folder as it assists them in medicating me. As well as other meds, I am on long term Opiate medication (Morphine) due to my Chronic Daily Pain but it's also a part of my Abortive Protocol for attacks. Opiates can be controversial in today's world but without them I would not have daily functioning or a Quality Of Life. I am living proof that long term opiates give me a life that I would not have without them. An "existence" I suffered with for 3 miserable years until I found my Specialist who first prescribed them. Every Paramedic who has attended to me have ALWAYS given me parts of my Protocol which also include strong Anti-Sickness drugs, mainly Ondansetron. Often times the Paramedics have already got me out of the attack before we even reach A&E. Thank you so much to all of you for believing in my condition & understanding my need for IV abort meds. Around 95% of A&E doctors continue my Protocol Meds in Resuss & validate me & my rare condition. Thank you.