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Lack of management

Story from nhs.uk

"Lack of management"

About: University Hospital (Coventry)

My daughter and i were referred to Walsgrove Rheum after disastrous years at Leics Royal Rheum, which resulted in the NHS medical Ombudsman getting involved

We ( I ) had my 1st appointment Aug 2019 which i was very impressed, had consultation with top consultant, Ultra sound, blood tests, X-ray and further consultation saying about getting me on biological Anti-tnf, was i impressed.

After 14 month ive had no treatment, promised appointments never happening, blood forms never arriving after after i phoned,

I seen the Rheum nurse which went well, chest X-ray and blood tests arranged and told would commence on Anti-tnf within a week of X-ray and test,

I had the X-ray and tests on 5th October 2020, I phoned Rheum on 19th Oct as i hadnt heard anything about treatment, no answer so left a message, and was very surprised to recieve an appointment for 17th Dec 2020,

What happened to the arranged treatment

That will mean 16 month with no treatment,

It feels that no one knows what is happening and they dish out the appointments to appese patients without looking into the arranged treatment

Unless we get answers we are going to ask to be discharged and will remain on steroids which i have been on for the last 27 years

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Responses

Response from University Hospital (Coventry) 3 years ago
University Hospital (Coventry)

Submitted on 02/11/2020 at 09:25
Published on nhs.uk at 16:16

Hello Alastair, I am very sorry that you have had to wait to receive treatment at University Hospital, Coventry. It is our top priority to ensure patients feel reassured and at ease during any appointment and we are sorry that this has not been the case. To raise this issue further, please contact the Trust’s Patient Advice and Liaison Service on 0800 028 4203. If you would prefer to contact us by e-mail, our address is feedback@uhcw.nhs.uk. Alternatively, you can write to us at the following address: PALS University Hospital Clifford Bridge Road Coventry CV2 2DX. If you do decide to contact us, please make us aware that you have left comments on the NHS website. The Trust is grateful for all feedback, positive or negative, as it means we can better understand what is important to our patients. Communications Team, University Hospitals Coventry and Warwickshire NHS Trust, Telephone: 0800 028 4203.

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