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"Neurology referral"

About: University Hospital Wishaw / Neurology

(as a parent/guardian),

My 1 year old son had a referral to neurology after having some "funny turns". I was asked to email videos of these. This afternoon I had a phone call from an epilepsy nurse. I was advised I had already spoken to the doctor and had been googling. I corrected the nurse as this was incorrect information, I have not spoken to this doctor nor have I been googling. The nurse said the doctor had advised at my son's review he had spoken to me. I am concerned information has been fabricated or may have been mixed up with another patient's information.

She also discussed my son having "an unusual laugh" in one of the videos and said I had been concerned about this.   This information is completely incorrect and has never been mentioned previously. This afternoon I have had to request a copy of my son's medical notes to ensure it doesn't contain incorrect information. I would like to speak to someone to discuss this further, I would not like another parent to experience this and I have concerns about the wrong information being communicated.  

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Responses

Response from Angela Dixon, Service Manager for Medical Directorate, University Hospital Hairmyres, NHS Lanarkshire 3 years ago
Angela Dixon
Service Manager for Medical Directorate, University Hospital Hairmyres,
NHS Lanarkshire
Submitted on 22/07/2020 at 16:59
Published on Care Opinion at 16:59


picture of Angela Dixon

Dear HC303

Apologies that this has been your experience, as we cannot share personal details over Care Opinion I would be grateful if you could get in touch with me via my secretary on 01355 584488 so we can get further details. I will look into this as a matter of urgency for you.

Kind Regards

Angela

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Response from Laura Jack, Service Manager, Specialist Children's Health Services Unit (SCSHU) inc. Paediatric & CAMHS, NHS Lanarkshire 3 years ago
Laura Jack
Service Manager, Specialist Children's Health Services Unit (SCSHU) inc. Paediatric & CAMHS,
NHS Lanarkshire
Submitted on 31/07/2020 at 09:59
Published on Care Opinion at 09:59


picture of Laura Jack

Dear HC303,

Thanks so much for getting in touch with us - I hope your discussion with Dr Andrew, which was set up via our Patient Affairs Team, was helpful and has clarified things. I would like to extend our apologies for the confusion caused and stress this has caused you.

If you have any ongoing concerns please get back in touch - my details are below.

Best wishes

Laura

Tel: 01355 597 438

Email: laura.jack@lanarkshire.scot.nhs.uk

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