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"Diagnosis pathway"

About: Leighton Hospital / Paediatrics

(as a parent/guardian),

I moved to Crewe in May 2019. My son was 6 years old at the time (he's now 7, nearly 8) my family and I came from Telford, where he was on a waiting list for a diagnosis process for ADHD which wasn't going to proceed for a long long time due to staffing issues. Once we moved to Crewe, I had a referral in place for him immediately. I waited a couple of months and finally got his initial appointment expedited due to the nature and severity of his symptoms.  He was seen in August 2019 after his appointment was expedited.  His current school and myself, then waited a month before we got the infamous 'Connor's questionnaire', which were promptly filled in by both of us. Time ticked on and I hadn't heard anything going into January.  I phoned the paediatric team, who told me they acknowledged the forms in December and that the next step on my son's diagnosis pathway would be about 6 months from then taking it to about June time.  

Sometime in February before Coronavirus lockdown came about, I asked the team to please expedite his appointment again (after all, there was obviously a reason for his first one to be so urgent). I was told I'd need a GP to write to them to confirm reasons. First GP I asked refused to get involved. I  then asked another who sent correspondence regarding my concerns.  I heard nothing, so contacted the team again who told me they couldn't even see any correspondence and that if they thought his appointment should be expedited again from what the doctor wrote, then they would have done. I waited yet again, then lockdown occurred.  I contacted them again only to be told they were now only dealing with already medicated patients!! I asked another GP to write to them and I STILL haven't heard anything!!!!!! He should have been seen by now and I know that Coronavirus/Covid-19 has turned the whole world upside down, but to hear nothing at all is EXTREMELY irritating.  In the meantime,  I have found out, they only want to go down the ASD diagnosis route and not ADHD too which is absurd! Nobody in Telford would even acknowledge he had ASD traits and only wanted to diagnose ADHD. I'm mum and I know he struggles with both disorders. 

The outcome for him, was to medicate to hopefully help control his impulsivity etc. which is of major concern. 

There seems to be nowhere I can turn to to be able to help him. PALS haven't even replied to me. 

To get no response at all from anywhere or anyone is very worrying and my family and I feel really let down.

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Responses

Response from Leighton Hospital 3 years ago
Leighton Hospital
Submitted on 17/07/2020 at 23:34
Published on nhs.uk on 20/07/2020 at 07:26


Thank you for getting in touch.

I am sorry to hear that your experience has not been as positive as it could have been. To investigate this further, please get in touch with the Customer Care Team on 01270 612410 or via email at: Customercareteam@mcht.nhs.uk

Thank you

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