"Left with no medication"

About: Dorset County Hospital / Rheumatology

(as the patient),

I have started a new drug for my Rheumatoid Arthritis, Methotrexate solution, which I self administer weekly by Prefilled pen, & have reduced my other medication from 2 a day to 1 a day, I received a months supply in April, no more was sent. 

I repeatedly rang the hospital but none were delivered till the end of this month, which had left me without any injections for 4 wks between April & June.

I rang mid June saying I haven’t had any supply for 4 wks & I was going down hill as I was only on 1 of my medication instead of 2, I was assured I would receive supply in the next few days, none came till the end of June, no one contacted me to say that there was a problem & offer a solution such as increasing the original medication back to 2 a day to see me through.

My dr’s surgery said they couldn't help as they had’nt received notice from the hospital that they could take over administration of the Methotrexate, Or other medication to assist with any problem there may have been, 

In mid June I received a copy of a letter saying that my Dr could take over the care of me with Methotexte, in the letter as an appology to my dr for the mix up in the letter not being sent earlier, WHY...they weren’t the one suffering. COVID 19 was not the problem as I asked.

So, do I start taking the injections again after a 4 week break from them, do I need to start on a low dose 10mg & slowly build up to 15mgs as I did when starting them, or jump straight into the higher dose after a 4week without them? 

During the 4 weeks my blood were done will the stopping of the meds reflect in the blood results, time & expense wasted.....

Responses

Response from Alison Male, Patient & Public Engagement Lead, Dorset County Hospital NHS Foundation Trust last week
Alison Male
Patient & Public Engagement Lead,
Dorset County Hospital NHS Foundation Trust
Submitted on 01/07/2020 at 17:10
Published on Care Opinion at 17:10


Hello Aggressive, I am sorry to read your feedback regarding your care at Dorset County Hospital. I’m concerned to read your comments and would like to investigate and answer your questions as soon as possible.

Please do contact the Patient Experience Team on 0800 7838058 or email pals@dchft.nhs.uk to let us know some further details and we will be very glad to help you.

Best wishes

Alison Male

Patient & Public Engagement Lead

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Response from Clare Jacklin, Chief Executive, NRAS last week
Clare Jacklin
Chief Executive,
NRAS

Lead the organisation

Submitted on 02/07/2020 at 11:26
Published on Care Opinion at 15:52


picture of Clare Jacklin

Why at no stage has this person not been signposted to NRAS who can offer support and information on coping with RA and could have helped get this situation resolved much quicker.

NRAS (National Rheumatoid Arthritis Society) is the only UK patient led organisation focussing specifically on RA.

To 'aggressive' please do call our helpline on 0800 298 7650 or email enquiries@nras.org.uk if you have any further concerns regarding what to do when situations like this arise.

www.nras.org.uk

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