"Inappropriate discharge."

In early 2019 I was allocated a new care co-ordinator. I saw them once and never again. The Psychosis Team were having staffing problems!

In August 2019 I was allocated another care coordinator. I saw this one only twice. Once with their agenda to discharge my case back to the GP, presumably based on my health records as I had no opportunity to get to know them. I explained that if I was not monitored regarding my medication, then I would obey the voices and stop taking the Olanzapine. I felt that care coordinators would know if I was not taking my medication and section me if I did not. This had been a deterrent in not obeying the voices. My care told them that he would be left picking up the pieces. We got no feedback on this. The feedback that I got was the care coordinator was to discuss with their manager about discharging the case.

On the next visit in August I was informed by the care coordinator that my case was to be discharged back to the GP. I just gave up! They said they would send me a discharge letter (I never received it until this week, following making a complaint about it). I have not had any annual GP checks stated in it.

Within the last few weeks I have made an official complaint via PALS about the above.

Needless to say, it does not take a genius to work out what happened next, I had no perceived deterrent and obeyed the voices, I immediately stopped taking the Olanzapine (it‘s been a year now). I was very firm with my carer and said he needed to keep it to himself or we would fall out big time.

I went through some terrible withdrawal symptoms for two weeks or so, but persevered: increased amounts of hallucinations, stomach cramps, sweats, head aches, irritability and not sleeping at night (I recently discovered that this could have been life threatening).

After this I found when I am not having the regular hallucinations I am having periods, when I am functioning intelligibly very well again. I would be extremely resistant to taking anti psychotic medication again and I have overcome any fear of a deterrent anyway.

Yes, my carer has struggled to help me cope when I have experienced some disturbing hallucinations and when I have heard voices telling me to self harm. I feel he needs more ongoing support with this and is one of my reason for writing to you know.

During recent weeks I have had a recurring visual, very disturbing hallucination. I am still persevering with this without medication.