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"I feel like I was not heard and understood"

About: Heavitree Hospital / Therapies

(as the patient),

At the pain clinic today I feel I wasn't taken seriously as my conditions dismissed as psychological. I have been diagnosed with and struggle with multiple conditions for many years and they were handwaved away, with the assessor not knowing details about them. For instance EDS was dismissed multiple times as just being a bit bendy. EDS is a multi systemic disorder that can be disabling and cause extreme pain. It can effect your whole body, as mine does, from digestion to blood disorders to respiratory problems. Being dismissed for this, as well as my dystaunomia being handwaved as mostly anxiety is ridiculous especially by professionals. Fibromyalgia and ME are proven physiological disorders. I feel like I was not heard and understood and was made to feel small and like a nuisance.  

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Responses

Response from Heavitree Hospital 4 years ago
Heavitree Hospital
Submitted on 04/11/2019 at 10:14
Published on nhs.uk on 09/11/2019 at 11:20


Thank you for taking the time to provide your feedback. We are very sorry to hear of your experience and we would welcome the opportunity to discuss this further with you. In order for us to fully investigate your concerns and address the issues you have raised, we would be grateful if you could contact out PALS department on 01392 402093 so that they can take some further details from you. We hope to hear from you soon so that these matters can be resolved. Once again, we are very sorry for your experience.

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