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"CNMT are intense but great!"

About: Edgware Community Hospital / Neurological Rehabilitation Centre

(as a service user),

I got permanent brain damage about a year ago from a disease.

I gave up work and my hobbies. Day-to-day, I could no longer wash or cook without supervision from my partner. I could re-heat leftovers from the night before but could not prepare a meal. I couldn't speak naturally and publicly like before (I was a public speaker) or even transfer information like credit card numbers on the phone. Writing is similar. So is typing.

I decided to stop driving for safety reasons. I now take public transport (the bus). I can take journeys but have to plan them. I manage to get to appointments but it's a struggle. I got practical support from a speech therapist, a physiotherapist... in fact several members of the Community Neuro Management/Rehabilitation Team, Royal Free London NHS Foundation Trust in Barnet.

During their intensive six weeks, they came to my home and gave me practical "that's good enough" strategies for basics like going upstairs, bedmaking, cooking burgers, writing, typing, walking and speaking on the phone to transfer information. The practical guidance I received from the Barnet Royal Free Community Neuro Management/Rehabilitation Team was intense but has made a real difference day-to-day.

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Responses

Response from Rakhee Prema, Clinical Lead for Responding, Neuro Rehabilitation Centre, Royal Free NHS Foundation Trust 4 years ago
Rakhee Prema
Clinical Lead for Responding, Neuro Rehabilitation Centre,
Royal Free NHS Foundation Trust

I support the community team to deliver the best care they can to people living with a neurological condition in Barnet

Submitted on 26/07/2019 at 14:15
Published on Care Opinion at 14:15


picture of Rakhee Prema

Dear Practical,

Thank you for sharing your story with us. We are glad to hear that the input you have received from the team has had an impact on your daily function.

Your story has been shared with the team and they are really happy know that they have been able to make a difference.

Kind Regards

Rakhee Prema behalf of the team at the NRC

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