"Superb team of people restricted by NICE..."

I have been supported by this team for over two years. All staff are lovely and very professional. Working within thier limits of soon to be revised NICE guidelines

Thier new setting is certainly an upgrade on the last one. The first appointment with the, very empathetic, nurse offers much needed clarity. Finally I felt my condition was validated yippee!! Like others I was excited and expecting lots of support from this service, like others i became a little disillusioned, when I realised all they could offer was information about how to manage this truly debilitating condition. I recognised my utter disappointment and consequent disillusionment was a result of years of suffering and now having a diagnosis I am now faced with the reality of no investigations, treatment nor possibility of a cure

I was hungry for tests and questions answered

Is ME caused by lymes or herpes virus, is it mitochondria not hypocondria, what is the prognosis? Unfortunately I quickly gathered the staff were forced to work within UK guidelines which are now almost defunct.

As NICE are very, very slow to catch up with current, international scientific evidence regarding myalgic encephalitis/cfs we are subject to treatment which is outdated, through no fault of the the staff. Fortunately there is is a NICE review of myalgic encephalitis/CDs being completed in 2020 so hopefully treatment options will change.

Unable to take up any exercise regime I opted for counselling through the service which I can only describe as superb!

In supporting me to identify strategies to manage the condition within the realms of my abilities the counselling is outstanding, therefore I would recommend this service to all persons suffering with this horrid condition. THANK YOU to the team at Sutton