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Care Opinion

Cleft Lip & Palate Support

Posted By Concerned Parent Son

"Cleft Lip & Palate Support"

About: Royal Hospital for Children and Young People (Edinburgh) / Paediatric surgery

(as a service user),

I am feeling a little concerned. My daughter turned 18 recently and we were told near to her 18th birthday she would be contacted regarding the next stage of her care. We have heard nothing from the Cleft team, I am calling the Sick Kids on a daily basis and asking to speak to a Cleft nurse to be told that there is no answer on the line.

I would like to know who I am able to contact and the best time to do this, I am not sure if the move to Glasgow has stopped the contact or because my daughter is now 18 she has been forgotten about.

Feeling very disappointed :( 

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Responses

Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian 4 years ago
Jeannette Morrison
Head of Patient Experience,
NHS Lothian

Submitted on 18/07/2019 at 09:28
Published on Care Opinion at 09:28

Dear Concerned Parent Son

Thank you very much for getting in touch with us via Care Opinion. I am sorry to hear of your difficulties in accessing the Cleft Service.

I would be grateful if you or your daughter could please contact the Patient Experience Team so that we can get a few more details from you to help us look into this. Contact details are:

Email: feedback@nhslothian.scot.nhs.uk

Tel: 0131 536 3370

Kind regards

Jeannette

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