"Pleural mesothelioma"

In April 2019, my mum was admitted to ARI with fluid on her lungs. We soon learned of a mass on the outer skin of her lung (Mesothelioma). This took a while to get a firm diagnosis. When we left hospital that day after talking with her doctor, who said this would be treated but not cured with chemo. However later there was mention of a trial based in Glasgow. (Mars 2 trial) this surgery could POSSIBLY PROLONG LIFE! Which we would have to travel to. This isn’t a problem! 

We proceeded to Glasgow Beatson hospital in June. When we arrived we learnt of our mum having a minor heart defect. Dr’s at the Beatson clinic would only allow my mum to go forward with the trail if she had a further bubble echograph. This test would be done at ARI our local infirmary.  We understand there is certain criteria to be met that will enable her to be on the trial. We have phoned the lung cancer specialist on many occasions, who told us that mum's doctor had marked this as an urgent test. We couldn’t comprehend how there is such an apparent hold up for an illness with a life limiting prognosis, Last week, we called again to be told that the deciding member of the cardiography dept had declined as they felt the echograph should be enough. The lung cancer specialist has then resubmitted this request with the reasons why.

 Of course, I’m absolutely appalled by the length of time this taken. We as a family feel let down on a massive scale by the system. 

Due to the the lack of progress, my mum is now considering standard chemo.

This has taken to date three months & my mum’s NO further forward!