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"My daughter was tested for dyspraxia"

I know in my heart that my daughter has dyspraxia. I have recently been diagnosed with dyspraxia. My daughter has severe sensory, mobility and sleep and bowel issues, plus issues with speech and language. Her nursery know that she has dyspraxia. The educational psychologist knows that she has dyspraxia. I know that she has dyspraxia. Her dad knows that she has dyspraxia. I will not stop fighting for this. The occupational therapist who saw her said that she had traits of some things but was unwilling to offer a diagnosis or the full help and care that my daughter is entitled to. I am not just an over concerned mother. My daughter puts us all in danger with her mobility. She's nearly had us killed in the middle of roads. The occupational therapist said she was not supposed to give my daughter prompts before each physical test but that she gave her several before each test. I was told that my daughters mobility issues were down to a "lack of concentration". Lack of concentration is the secondary sign of dyspraxia. Maybe an education into dyspraxia will help. My daughter meets 99% of the signs of dyspraxia in children of her age according to the dyspraxia Foundation website. Her educational psychologist agreed that she showed signs of dyspraxia, sensory processing disorder and also autism. I have been told of another clinic that is supposed to be more apt at diagnosing children with this special learning difficulty. I would much rather not have to mess around with re referrals but I may have to, if I cannot get a second opinion with the right help and the right diagnosis. Then I will have grounds for a formal complaint. I really hope to get this issue resolved somehow. I know my daughter is entitled to a second opinion and I will always fight to do what is right by her.

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Responses

Response from Breightmet Health Centre 4 years ago
Breightmet Health Centre
Submitted on 19/08/2019 at 15:31
Published on nhs.uk at 16:07


Hi,

I am so sorry to read about your experience. I would like to look into this further and pass on your concerns on to the appropriate team. If you would be happy for me do this, please contact the Patient Advice Liaison Service Team on either Freephone number 0800 195 4462 or email cwp.pals@nhs.net.

Kind Regards

Patient Advice and Liaison Officer

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