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"Gynaecology referral for painful periods"

About: University Hospital (Coventry) / Gynaecology

(as a service user),

I was referred to a consultant gynaecologist after my GP thought that my painful periods required further investigation and management by a specialist.

On the day of the appointment, I was told to come through by a nurse. I entered the consultant's office to find them engrossed in their Smartphone. It took some 30 seconds to be acknowledged. I found this not only to be unprofessional, but extremely rude.

When they were finished on the phone, I explained I had severe period pain with diarrhoea/vomiting. Despite taking medication for it, I'm left unable to carry out normal activities. The consultant told me that I should continue taking the medications I was already taking and managing my pain as I was already managing it. They refused to prescribe co-dydramol (a medication given for period pain-see NHS website), giving the reason that it's not prescribed anymore. This isn't true: it's in the BNF.

The consultant refused to prescribe anything else in case I'd get addicted to it. This is rare with therapeutic use (especially when it's for 2 days per month, and it's not as though I have a history of drug abuse) and if stronger painkillers cannot be given for severe pain, then what are they actually for? They refused to recommend that my GP prescribe me anything else, and refused to refer me to a pain clinic, stating that Gynaecology have never referred anyone to a pain clinic.

I'd explained I didn't like how hormones affect my mental health, so didn't want to try the mini pill, and have had bad side effects from COCs. I was told I had to try the mini pill, or put up with the pain, which, even though it hurts so much it makes me vomit, this consultant didn't think was that bad anyway since it only lasts 2/3 hrs on 1-2 days. They then suggested acupuncture (NICE guidelines recommend against this as there's no evidence it works, which is why it isn't available on the NHS. When I brought this to attention, they tried to assert that painkillers have no evidence behind them either. Every hospital in the land wouldn't be using opiates for pain relief if this were true).

The doctor also also recommended shop bought period pain killers (my GP wouldn't have referred me to a gynaecologist if they thought my symptoms were so mild as to be manageable using OTC ibuprofen, which I'd already made clear to the consultant I wasn't able to take due to gastrointestinal issues.). They also told me that I couldn't have the Mirena coil fitted because I haven't had children. This is untrue: not only do I know numerous women who haven't had children who have had the Mirena coil fitted, the UKMEC and BNF information on the Mirena coil, as well as NICE guidelines, all mention absolutely nothing about whether the patient has had children.

I had high hopes this specialist would be able to help me, only to be invalidated, have my intelligence insulted, and have my pain dismissed. Disheartened and angry that they'd refused to help me, I actually left the consultant's office in tears. As I stood up to leave, the consultant said that they hoped my pain gets better soon. I do not see how it is going to get better, since they refused to prescribe any medication or make any of the recommendations that I need to facilitate its getting better.

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Responses

Response from University Hospital (Coventry) 5 years ago
University Hospital (Coventry)
Submitted on 04/02/2019 at 10:03
Published on nhs.uk at 11:06


Hello,

Thank you for taking the time to provide feedback on your experience at University Hospital, Coventry

I apologise for the problems you faced with one of the consultants, I would advise you submit a requested through our PALS service to enable us to investigate further for you, please contact the Trust’s Patient Advice and Liaison Service on 0800 028 4203.

If you would prefer to contact us by e-mail, our address is feedback@uhcw.nhs.uk

Alternatively, you can write to us at the following address: -

PALS

University Hospital

Clifford Bridge Road

Coventry

CV2 2DX

If you do decide to contact us, please make us aware that you have left comments on the NHS Choices website.

The Trust is grateful for all feedback, positive or negative, as it means we can better understand what is important to our patients.

Thank you for leaving your comments on Care Opinion.

Communications Team

University Hospitals Coventry and Warwickshire NHS Trust

Telephone 0800 028 4203

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Readtheniceguidelines (a service user)

I submitted an official complaint to PALS concerning my experience, detailed above. Over 4 months later, I received an ill-written response; replete with more unsubstantiated information (fitting, since I contended that the consultant concerned had repeatedly given me incorrect information); and that failed to address multiple aspects of my complaint. I wrote another letter to PALS pointing all of this out. After 5 months, I received a second letter from PALS. This letter unconvincingly 'explained' the consultant's behaviour; refused to acknowledge, even when I'd cited official guidelines to doctors, that I'd been given any incorrect information; refused to acknowledge that any aspect of my care had been sub-standard, or that the consultant should have done anything differently; outright denied several of the concerns I'd raised, claiming that the consultant couldn't remember; still did not address every aspect of my complaint; and contained no trace of a genuine apology or any explanation as to what will be done to ensure that future patients don't suffer similarly. After waiting a number of months and receiving two highly unsatisfactory and extremely poor quality responses from PALS, I've given up trying to get any sort of resolution through dealing with them. I think it's a shame that this Consultant/Trust/Department doesn't seem capable of taking on board constructive criticism or listening to patients' views and experiences, all of which have the potential to improve future patients' care and, in turn, their quality of life. In their correspondence with me, PALS also persistently got my name wrong. While this is a minor point, I think it's indicative of the overall lack of respect and care with which my complaint was dealt.

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