"Still not getting pain relief right"

I'm a patient Living with sickle cell anemia which is a chronically painful disease. It is hard enough that we patients are NOT treated on the haematology wards where there are nurses and doctors take our illness seriously and treat us according but we get on wards where none of the doctors or nurses know about our illness and treat us the right way. We get neglected! by not getting pain relief when we should and that causes another relapse, make our pain worse and can even spread to different parts making all the previous treatment useless.

I've been neglected for the 6th time now by not getting pain relief when I should and this time even worse the nurse the ward at city hospital withhold my syringe for the pump thats managing my pain just because I couldn't confirm my name due to the pain. I was in pain for over 2 hours not given any pain relief causing my pain to get the worst that now the pain team is being contacted for the 2nd time today. My pump medication has been changed for the 2nd time since it hasn't been working effectively on my pain anymore and this all due to the nurses. to find a solution we made a deal after I complained for the 3rd time that once the syringe reaches 10ml I should call the nurse to get another one sorted before it ends so I wont have to go through the pain but none of the nurses have managed to do that.

I am in hospital for nearly 4 weeks now with no improvement and this is an ongoing issue with all sickle cell patients and no matter how many feedbacks we give no change has been made. I've contacted PALS and still no change has been done the next step will be the CQC for it is unacceptable that we have to go through all this every time we get admitted to the hospital. We never get our pain sorted we suffer more in hospital that we do at home and this is unacceptable.