This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?
Care Opinion

Easy on the eye needs more training

Story from nhs.uk

"Easy on the eye needs more training"

I am an adult with dyslexia.

My care plan was scribbled and handwritten. I asked for something that is readable. I also asked for information on my diagnosis.

First i got badly photocopied info, that was grey and fuzzy.

I pointed out the stuff I was given was difficult to read, and I got some easy on the eye stuff.

It is bright, and colourful, with lots of pictures.

But pretending it is equivalent is a lie!! The content is not the same, its a diluted over simplified thing to cater for those with learning disabilities.

I told my care co-ordinator, and they said if i couldnt read, i cant have access to the the level of information about my condition I need. I have a Phd...but I am also dyslexic. I can understand and comprehend complex information, I just need it to be readable.

Since when is it NHS policy to refuse to give patients information?

Would it be so difficult to use readable fonts in alll comminications, and have typed care plans?

your website says ...

The Accessible Information Standard tells NHS and adult social care organisations they must make sure people get information in different formats such as:

Hand on braille

Easy read

Braille

Advocate

British Sign Language (BSL)

Large print

Email

I asked for my appointments and other information to be emailed to me, but I was told, "we do not send emails because we can not garantee it is secure"

Staff need training about what easy on the i is, and when to use it, as well as what your website says about accesible information!

More about:
nhs.uk logo
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Linda Rose, Head of Nursing and Patient Experience, Nursing Professions and Quality, Leeds and York Partnership NHS Trust 5 years ago
Linda Rose
Head of Nursing and Patient Experience, Nursing Professions and Quality,
Leeds and York Partnership NHS Trust

Submitted on 28/11/2018 at 14:57
Published on Care Opinion at 20:01

picture of Linda Rose

Hi

Thank you for sharing your experience with us.

It was disappointing to hear of the difficulties you've encountered with accessible information and from what you've shared in this posting, it does sound like we could have done more to help you be involved in your own care and treatment.

A care-plan should reflect a joint understanding and agreement between anyone using the services and the team / individual(s) working with them.

Care plans are usually typed and printed (not photocopied) and given to service users and, where appropriate their families and carers, to read through and then discuss again. When we ask service users to sign their care plan it helps us to have a conversation and get a measure of whether someone is happy with the proposed treatment. I agree that we don’t routinely email care plans to people, as whilst the email provider (we use NHS Mail) is a secure service, we cannot guarantee that other email providers operate the same degree of security. I'm sorry that the information you received didn't meet the standard expected.

I have shared the points you have raised and this will be discussed at the services next clinical Improvement Forum -where teams take the time out to share feedback, think about lessons learnt and how we can use feedback to make improvements.

I will also ask the team manager to speak to our Patient experience and involvement team and the communications team to ensure that our staff know where to direct any queries related to accessible information if they are struggling to find an appropriate source.

Should you wish to discuss your experience further, you are welcome to contact our Patient Advice & Liaison Service (PALS) on 0800 052 5790 or via pals.lypft@nhs.net. If you would prefer, you can contact the Clinical Lead or Clinical Team Manager at Malham House on 0113 8558850 to discuss your concern further and for them to look into your experience in more detail. Both PALS and the Lead/Manager at Malham House are available Monday to Friday 9-5. We take any issue raised very seriously and wish to ensure all people accessing our service receive the best possible care and experience.

With kind regards

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k