This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?
Care Opinion

Cleft service from excellent Edinburgh service moved to Glas...

Posted By Lothian Parent

"Cleft service from excellent Edinburgh service moved to Glasgow"

About: Royal Hospital for Children (Glasgow) Royal Hospital for Children and Young People (Edinburgh)

(as a parent/guardian),

My son was diagnosed with bilateral cleft lip and palate at my 20 week scan.

I was worried about the next stages operations etc (as I had previous experience) I needn't have worried the Edinburgh surgeon and her team offered the best care and support from this day on. We were always prepared for every stage of my sons ops and development. We will always be very grateful to this team for their time and expertise. However at a time of great anxiety due to timing of bone graft ops our edinburgh team has slowly started to disappear and we haven't even been offered the opportunity to meet with any staff in Glasgow! We as parents are meant to trust that the Glasgow cleft team can offer the same service and continuity of care for our son. This is most definitely not the case so far. We have no contact details for any member of staff in Glasgow team. We are used to phoning our cleft nurses or our Surgeon secretary and getting a very quick response and get the reassurance and support we needed at any given time. My sons needs haven't got any less and yet we still have no relevant information about our so called better equipped service in Glasgow! ! If it wasn't for the limited staff in Edinburgh cleft team offering the excellent service they always have we truly wonder if anyone would remember our son actually exists and is still under the NHS care! Dr mehendale from Edinburgh is amazing unfortunately can't say what Glasgow team is like as not one person from Glasgow has been intouch to introduce themselves

More about:
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian 6 years ago
Jeannette Morrison
Head of Patient Experience,
NHS Lothian

Submitted on 14/09/2017 at 14:52
Published on Care Opinion at 16:35

Dear Lothian Parent

Thank you very much for sharing your feedback with us and l am really sorry to read what has been happening.


I have shared your feedback with the team at the Royal Hospital for Sick Children and we would like to hear a bit more of what has been happening with you and your son. I would be grateful if you can please contact the Patient Experience Team:

Email: feedback@nhslothian.scot.nhs.uk

Telephone 0131 536 3370

We look forward to hearing from you.

Kind regards

Jeannette

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Pamela McGoldrick, Senior Organisational Development Advisor, Women & Children's Services, NHS Greater Glasgow and Clyde 6 years ago
Pamela McGoldrick
Senior Organisational Development Advisor, Women & Children's Services,
NHS Greater Glasgow and Clyde

Submitted on 14/09/2017 at 15:27
Published on Care Opinion at 16:35

picture of Pamela McGoldrick

Dear Lothian Parent

I am sorry that you have been left so frustrated by the inability to establish communications with the Cleft team based in Glasgow. We would like to understand and resolve the issues that you describe and ensure that you and your family have the continuity of care that is so important as you move through the next steps in your son's journey.

It would be really helpful if you could email me at Pamela.mcgoldrick@ggc.scot.nhs.uk and with some additional information I can then put you in contact with staff who will be able to help you directly.

I look forward to hearing from you

Best wishes

Pam

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k