"Treated disgustingly"

I have been treated now for 18 months for gca. In the beginning I was sent weeks later after being put on 50mg of prednisolone. The Dr who was going to do the biopsy apologised and said I had been on too high a dose for it to show after all that time I had waited. They asked me if I was in pain and at that time absolutely no pain. They said that that is a clear indicator that I had gca. I have had every kind of tablet or injector you can think of all carrying side effects put in my body. I was told to have a biopsy done again. Poor Dr I had last time saying exactly the same thing. On steroids for so long I have to taper really slowly. Was really pleased with myself as I got to 10mg and flared so bad I went back to 50mg. My gp absolutely excellent. Managed an appointment for a consultant. An absolutely horrendous visit. I'm too young for gca I don't think you have it. I don't know what it is but it's worth the risk of coming off of steroids. I do not want to go blind or have a stroke. All the systems have pointed to gca until now as I'm now getting terrible pressure in my headband my eyes are drooping. I have pressure there as well. cerebral haemorrhage runs in my family which gca can cause. The doctor now thinks I have a sinus problem but that is also one of the gca effects. They are sending me for a brain scan. It's my life they are taking a chance with. I think it's an absolute disgrace and they will see me in 3 months.