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"Reassured me to keep positive"

About: Somerset NHS Foundation Trust / Adult Speech and Language Therapy

(as the patient),

I have rare condition called Inclusion Body Myositis. Because of my condition l have experienced swallowing problems so I contacted Nicola Specialist Physio Neuromuscular Disease I then was seen by Jayne Speech and Language Therapist. Nicola and Jayne new all about my condition and explained what could be done in future to help me. Made feel at home and reassuring the explanation of the future was excellent and not just up to me.

To top off all my condition because there is no cure for my condition but hope one will come along??? I will keep positive with the help From Nicola and her team and now Jayne and her team. Overall I struggle to view my feeling but the experience with contact with these Specialist has reassured me to keep positive and may be some day there will be good.

Thank you all.

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Responses

Response from Karen Dockings, Head of Adult Speech and Language Therapy, Adult Speech and Language Therapy, Somerset NHS Foundation Trust 2 days ago
Karen Dockings
Head of Adult Speech and Language Therapy, Adult Speech and Language Therapy,
Somerset NHS Foundation Trust
Submitted on 31/10/2025 at 07:52
Published on Care Opinion at 08:52


Many thanks for taking the time to share your experience of receiving support from physiotherapy and speech and language therapy. Wishing you all the best as you navigate your journey with support from these specialist services.

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