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"Crisis help and follow up"

About: Camden and Islington NHS Foundation Trust

(as a carer),

Firstly,  the Trust must surely realise that when people like me post on here we are already worn down by having told managers and front line workers what the problems are and have been dismissed. Often for years. I have made a complaint in the past but never again as my daughter felt victimised after. I am part of a carers group and we all feel the same. By the time we have got here believe me we have exhausted every single channel the Trust tells us to on here. It needs to sort out its complaint system so that we can talk without making it a formal complaint. Anytime anyone wants to address concerns we are always told to make a complaint or it wont get listened to. This is very wrong. We need listening forums and critical friends groups not made up of the same patients and carers always preferred. Why not speak to those very unhappy so we don't end up on here?

This is again about the crisis line. Stop telling everyone there is only one worker on at night and employ more. Stop relying on answerphones when so many people don't have a phone or has been mentioned wont pick up to unknown numbers.

My daughter also has schizophrenia. I am her carer but don't have any rights. I am also her nearest relative when she is sectioned . I want to know when I or she or a friend of hers calls the crisis line what happens afterwards? I would have expected them to let her community team know but this hardly ever happens. In the last 2 years the team have only been told 3 times that they were called and 2 of those ended up as sections so the team were told by the ward. So mid February her friend rang the crisis line number to tell them she was very paranoid and had barricaded herself in the bedroom and the friend was very worried about her safety. My daughter had stopped her medication ( not unusually) and was deteriorating. The crisis line went to answerphone numerous times. Then the friend was told to ring an ambulance but with no mental health support offered at all as to what to do instead. She was told that the crisis line's job was not to deal with emergencies! So what is the point of it or was this an errant worker or is it a new policy that the Trust doesn't see itself as being there for mental health emergencies.

Now we don't know what to do. Plus the community team yet again said they knew nothing about the call. Isnt this sent through automatically? It shouldn't be a carers job to communicate for the crisis team. Your system should have automatic flags to tell community teams if real people cant or wont.

Like so many carers I too am exhausted and very fearful for the future. If the crisis line isn't for emergencies please could the person who responds here explain what they are there for. Apart from anything else they gatekeep all the beds for admission. Is it now that the crisis team will only deal with emergencies if someone is at A&E?

As her carer I need to know who to call and when. The crisis line isn't working at all. The quality of some of the workers is appalling. There is confusion in workers and inconsistency . They must tell community teams when someone has called. It left my daughter really unsafe as no one followed up with the appointment she needed. She is going to end up admitted again .

Please don't tell me call you as I have already about so much in the past I have caller fatigue. And it feels like no one takes any notice or this would be fixed

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Responses

Response from Camden and Islington NHS Foundation Trust 5 years ago
Camden and Islington NHS Foundation Trust
Submitted on 11/05/2018 at 10:27
Published on nhs.uk at 11:05


Dear Vassili

We apologise for the delay in responding to your review. Thank you for taking the time to share your and your daughters experience with us and for raising your concerns.

We are sorry to read that your daughter felt victimised following a formal complaint and that contacting our crisis line wasn’t a pleasant experience for you both.

Although you mention that you would not like to contact us, there are many concerns that you have raised here which we would like to discuss with you. Please do contact us using the contact details below so that we are able to do this.

Debbie May, Operational Service Manager Crisis Resolution Teams & Crisis Call

Email: debbie.may@candi.nhs.uk

We hope to hear from you however, if not, we do still take your comments here seriously and will address matters as much as we can.

Kind regards

Camden and Islington NHS Foundation Trust

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